Module 6 – Epilepsy
Seizure status, seizure types and EEG files 6.0 Seizure History (ANGSeizureTypes) No Code Question Response 6.0.0 ANGEpilepsyEver2 Has your child/ adult ever experienced any seizures?
Seizure status, seizure types and EEG files 6.0 Seizure History (ANGSeizureTypes) No Code Question Response 6.0.0 ANGEpilepsyEver2 Has your child/ adult ever experienced any seizures?
This module is completed when entering the patient registry and updated as required, the six month module prompts updates as well. Information is collected on
Updates to this module are made as required if there are new hospitalisations or surgeries. 4.4 Details of Hospitalisation/Surgery (ANGHospitalVisit1) No Code Question Response 4.4.3a
Updates to this module are made as changes are made, but are also prompted in the 6 month update. 7.2 Medication/ Intervention Started/ Changed (ANGMedIntCurrent2)
Updates to this module are made as changes are made, but are also prompted in the 6 month update. 7.3 Medication/ Intervention Stopped (ANGMedIntCeased2) No
For Professionals & Researchers
For Caregivers
The Global Angelman Syndrome Registry is a project designed for individuals diagnosed with Angelman syndrome and those working towards research and treatments.
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