
Module 1 – Newborn and infancy history
Feeding, behaviours, health problems and developmental behavioural in the newborn and infancy period. 1.1 Did the child reside with you in (ANGNewbornInfancyReside) No Code Question
Feeding, behaviours, health problems and developmental behavioural in the newborn and infancy period. 1.1 Did the child reside with you in (ANGNewbornInfancyReside) No Code Question
This module is completed when entering the patient registry and again annually to collect information on symptoms related to Angelman syndrome such as Reflux, constipation,
This module is completed when entering the patient registry and updated annually for children under ten then every two years. This module collects information on
Updates to this module are made as required if there are new hospitalisations or surgeries. 4.4 Details of Hospitalisation/Surgery (ANGHospitalVisit1) No Code Question Response 4.4.3a
For Professionals & Researchers
For Caregivers
The Global Angelman Syndrome Registry is a project designed for individuals diagnosed with Angelman syndrome and those working towards research and treatments.
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