Module 2 – History of diagnosis and results
Age of diagnosis, results and the pathway to diagnosis 2.1 History of Diagnosis (ANGHistoryOfDiagnosis) No Code Question Response 2.1.1a ANGAgeDiagnosis2 Age at diagnosis 2.1.3 ANGCurrentPatientAge
Module 6 – Epilepsy
Seizure status, seizure types and EEG files 6.0 Seizure History (ANGSeizureTypes) No Code Question Response 6.0.0 ANGEpilepsyEver2 Has your child/ adult ever experienced any seizures?
Module 10b: New Hospitalisations or Surgical Procedures
Updates to this module are made as required if there are new hospitalisations or surgeries. 4.4 Details of Hospitalisation/Surgery (ANGHospitalVisit1) No Code Question Response 4.4.3a
Module 10h: Clinic Visit
This module is completed when entering the patient registry and updated as required. Information is collected about clinics that the participant attends. No Code Question
Module 10i: Pathology and Diagnostics
This module is completed when entering the patient registry and updated as required. Data and results are collected on EEG, bloods, MRI, CSF, microbiome and