Module 2 – History of diagnosis and results
Age of diagnosis, results and the pathway to diagnosis 2.1 History of Diagnosis (ANGHistoryOfDiagnosis) No Code Question Response 2.1.1a ANGAgeDiagnosis2 Age at diagnosis 2.1.3 ANGCurrentPatientAge
Age of diagnosis, results and the pathway to diagnosis 2.1 History of Diagnosis (ANGHistoryOfDiagnosis) No Code Question Response 2.1.1a ANGAgeDiagnosis2 Age at diagnosis 2.1.3 ANGCurrentPatientAge
This module is completed when entering the patient registry and updated annually for children under ten then every two years. This module collects information on
For Professionals & Researchers
For Caregivers
The Global Angelman Syndrome Registry is a project designed for individuals diagnosed with Angelman syndrome and those working towards research and treatments.
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