Home
About
Vision, Mission & values:
Making it faster and easier to work together to understand and develop treatments of Angelman Syndrome.
About Angelman:
Learn the basics about Angelman syndrome, a simple overview for anyone who wants a quick refresher while visiting the Registry.
Meet The Team:
Meet the staff behind the Global Angelman Syndrome Registry.
Partners
Partners:
Our partners promote the Registry in their region. Connect with an Angelman syndrome group near you!
Collaborations:
We collaborate with reputable organisations and researchers whose work will benefit people with Angelman syndrome.
FAST Search and Rescue:
A collaborative initiative to bring the global community together and identify every individual in the world living with Angelman syndrome.
Data Access
Request Data Access:
Are you a Clinician or Researcher? Apply for access to our data here.
Data Access:
Find out what data we collect at the Global Angelman Syndrome Registry, and how to get access.
Modules:
All data is collected in modules, separated by topics. View the available modules here.
Research
FAQs
Contact
Home
About
Vision, Mission & values:
Making it faster and easier to work together to understand and develop treatments of Angelman Syndrome.
About Angelman:
Learn the basics about Angelman syndrome, a simple overview for anyone who wants a quick refresher while visiting the Registry.
Meet The Team:
Meet the staff behind the Global Angelman Syndrome Registry.
Partners
Partners:
Our partners promote the Registry in their region. Connect with an Angelman syndrome group near you!
Collaborations:
We collaborate with reputable organisations and researchers whose work will benefit people with Angelman syndrome.
FAST Search and Rescue:
A collaborative initiative to bring the global community together and identify every individual in the world living with Angelman syndrome.
Data Access
Request Data Access:
Are you a Clinician or Researcher? Apply for access to our data here.
Data Access:
Find out what data we collect at the Global Angelman Syndrome Registry, and how to get access.
Modules:
All data is collected in modules, separated by topics. View the available modules here.
Research
FAQs
Contact
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Israel Engelman Syndrome Association
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About
About & Our Mission
What is Angelman
Meet The Team
Partners
Partners
Collaborations
FAST Search and Rescue
Data Access
Data Access
Modules
Data Request Form
Research
What is Angelman Syndrome?
Why Register?
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FAQs
Contact
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