Home
About
Vision, Mission & values:
Making it faster and easier to work together to understand and develop treatments of Angelman Syndrome.
Our Reach:
Explore global participation in the Angelman Syndrome Registry with our interactive map, highlighting contributions from families around the world.
Meet The Team:
Meet the staff behind the Global Angelman Syndrome Registry.
Partners
Partners:
Our partners promote the Registry in their region. Connect with an Angelman syndrome group near you!
Collaborations:
We collaborate with reputable organisations and researchers whose work will benefit people with Angelman syndrome.
FAST Search and Rescue:
A collaborative initiative to bring the global community together and identify every individual in the world living with Angelman syndrome.
Data Access
Request Data Access:
Are you a Clinician or Researcher? Apply for access to our data here.
Data Access:
Find out what data we collect at the Global Angelman Syndrome Registry, and how to get access.
Modules:
All data is collected in modules, separated by topics. View the available modules here.
Research
FAQs
Contact
Home
About
Vision, Mission & values:
Making it faster and easier to work together to understand and develop treatments of Angelman Syndrome.
Our Reach:
Explore global participation in the Angelman Syndrome Registry with our interactive map, highlighting contributions from families around the world.
Meet The Team:
Meet the staff behind the Global Angelman Syndrome Registry.
Partners
Partners:
Our partners promote the Registry in their region. Connect with an Angelman syndrome group near you!
Collaborations:
We collaborate with reputable organisations and researchers whose work will benefit people with Angelman syndrome.
FAST Search and Rescue:
A collaborative initiative to bring the global community together and identify every individual in the world living with Angelman syndrome.
Data Access
Request Data Access:
Are you a Clinician or Researcher? Apply for access to our data here.
Data Access:
Find out what data we collect at the Global Angelman Syndrome Registry, and how to get access.
Modules:
All data is collected in modules, separated by topics. View the available modules here.
Research
FAQs
Contact
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About & Our Mission
Our Reach
Meet The Team
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Partners
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FAST Search and Rescue
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Data Access
Modules
Data Request Form
Research
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