Angelman Registry - Parent Registration

For legal reasons you must be 18 or over in order to register here. If you are the parent or guardian of a child that you would like to register as a patient, please enter your own data in this first step. You will be asked for the patient’s data in a later step. If you are a patient who is under 18, please get your parent or guardian to fill in this form with you.

Username error: This username already exists, please choose a different username.

If you have already registered with Angelman Registry and would like to update your data or add another patient, you don't have to register again. Just go to the login page and login with the e-mail address and password you previously registered with.

If you have forgotten your password, please click on 'forgotten your password?'

Parent/Guardians: You may register one patient at this stage - if you have multiple patients to register, you will be able to enter their details once you have logged into the registry. Please note you must be the patient's parent or guardian to register on their behalf.

Privacy Statement - All information we receive from you will be treated confidentially and will be encrypted and stored on a secure server. Only de-identified health information will be made accessible to qualified researchers who are granted permission by the Steering committee.

Please fill out all required fields
With your e-mail address and the password you choose here, you can login at any time to view or edit your data. In order to protect your personal data against unauthorised access, please choose a password which is hard to guess and write it down in a safe place. Note that the password is case-sensitive. Your password must be at least 6 characters long and contain a number.
Please provide valid email address as your username

Parent/Guardian Details


Patient Details


Same details as person completing