Angelman Registry - Parent Registration
For legal reasons you must be 18 or over in order to register here. If you are the parent or guardian of a child that you would like to register as a patient, please enter your own data in this first step. You will be asked for the patient’s data in a later step. If you are a patient who is under 18, please get your parent or guardian to fill in this form with you.
Username error: This username already exists, please choose a different username.
If you have already registered with Angelman Registry and would like to update your data or add another patient, you don't have to register again. Just go to the login page and login with the e-mail address and password you previously registered with.
If you have forgotten your password, please click on 'forgotten your password?'
You may register one patient at this stage - if you have multiple patients to register, you will be able to enter their details once you have logged into the registry. Please note you must be the patient's parent or guardian to register on their behalf.
Privacy Statement - All information we receive from you will be treated confidentially and will be encrypted and stored on a secure server. Only de-identified health information will be made accessible to qualified researchers who are granted permission by the Steering committee.
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